Exploring the Lifeworld of Caregivers of Patients with Cancer: An Interpretative Phenomenological Study

Authors

    Samira Pazira PhD Student, Department of Psychology, KI.C., Islamic Azad University, Kish, Iran
    Khadijeh Abolmaali * Department of Psychology, NT.C., Islamic Azad University, Tehran, Iran Kh.abolmaali@iau.ac.ir
    Morvarid Ahadi Department of Psychology, University of Welfare and Rehabilitation Sciences, Tehran, Iran
    Mehran Azadi Department of Psychology, ST.C., Islamic Azad University, Tehran, Iran

Keywords:

Bioworld, Caregivers of Cancer Patients, Interpretive Phenomenology

Abstract

Objective: The aim of this study was to gain an in-depth understanding of the lived experiences and meaning-making processes of caregivers of patients with cancer within the Iranian cultural context using an interpretative phenomenological approach.

Methodology: This qualitative study was conducted using Interpretative Phenomenological Analysis (IPA). Thirteen primary family caregivers of hospitalized cancer patients were purposively selected from Fatemeh Zahra Hospital during 2024–2025. Data were collected through in-depth semi-structured interviews and analyzed following Smith and Shinebourne’s IPA framework. Trustworthiness was ensured based on Lincoln and Guba’s criteria.

Findings: Data analysis yielded 152 initial themes, which were clustered into 20 subordinate themes and synthesized into six superordinate themes: experienced emotions, fundamental factors, supportive factors, the process of meaning-making, feelings of emptiness and meaninglessness, and self-care. The findings revealed caregiving as a complex and dynamic experience encompassing profound emotional distress, existential challenges, and opportunities for personal growth.

Conclusion: Caring for a patient with cancer is a deeply emotional and existential experience that requires comprehensive psychological, social, and educational support for caregivers. Interventions focused on emotional support, meaning-centered approaches, and self-care training are essential to promote caregivers’ mental health and well-being.

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References

Allison, K. R., Patterson, P., McDonald, F. E. J., Bibby, K., Ciarrochi, J., Tracey, D., Hayes, L. L., Wright, A., Konings, S., Davis, E., Hulbert-Williams, N. J., Wakefield, C. E., & White, K. (2023). Truce: Feasibility and acceptability of an Acceptance and Commitment Therapy-based intervention for adolescents and young adults impacted by parental cancer. Journal of Contextual Behavioral Science, 28, 91-101. https://doi.org/10.1016/j.jcbs.2023.03.014

Appelbaum, A. J. B. (2024). Meaning-Centered Psychotherapy for Cancer Caregivers: Therapist Manual and Caregiver Workbook. Oxford University Press. https://doi.org/10.1093/med/9780197640777.001.0001

Castro, E. K. d., Beltrão, G. B., Armiliato, M. J., Peloso, F. C., & Gregianin, L. J. (2022). Illness Perceptions in Childhood Cancer Survivor and Caregivers’ Dyads. Clinical Child Psychology and Psychiatry. https://doi.org/10.1177/13591045221095300

Collaço, N., Gamble, A., Morgan, J. E., Phillips, B., Culliford, D., & Darlington, A. S. (2022). Experiences and Support Needs of Parents/Caregivers of Children With Cancer Through the COVID-19 Pandemic in the UK: A Longitudinal Study. Archives of Disease in Childhood, 108(3), 198-203. https://doi.org/10.1136/archdischild-2022-324905

Deshields, T. L., Asvat, Y., Tippey, A. R., & Vanderlan, J. R. (2022). Distress, depression, anxiety, and resilience in patients with cancer and caregivers. Health Psychology, 41(4), 246. https://doi.org/10.1037/hea0001170

Doubova, S. V., Bhadelia, A., Pérez-Moran, D., Martinez-Vega, I. P., García-Cervantes, N., & Knaul, F. (2023). Dimensions of suffering and the need for palliative care: experiences and expectations of patients living with cancer and diabetes and their caregivers in Mexico: A qualitative study. BMJ open, 13(12), e075691. https://doi.org/10.1136/bmjopen-2023-075691

Ghezeljeh, T. N., Seyedfatemi, N., Bolhari, J., Kamyari, N., & Rezaei, M. (2023). Effects of Family-Based Dignity Intervention and Expressive Writing on Anticipatory Grief in Family Caregivers of Patients With Cancer: A Randomized Controlled Trial. BMC psychiatry, 23(1). https://doi.org/10.1186/s12888-023-04715-x

Guthrie, C. S., Boparai, S., Friedman, D. L., Compas, B. E., & Katz, L. F. (2025). Caregiver Emotion Socialization and Child Adjustment in Context of Pediatric Cancer. Journal of Family Psychology, 39(4), 491-502. https://doi.org/10.1037/fam0001323

Karimi Moghaddam, Z., Rostami, M., Zeraatchi, A., Mohammadi Bytamar, J., Saed, O., & Zenozian, S. (2023). Caregiving burden, depression, and anxiety among family caregivers of patients with cancer: An investigation of patient and caregiver factors. Front. Psychol., 14, 1059605. https://doi.org/10.3389/fpsyg.2023.1059605

King‐Dowling, S., Hammer, S. N., Faust, H. L., Madden, R., Drake, S., Ahmed, A., Albee, M., Deatrick, J. A., Daniel, L. C., Pai, A. L. H., Freyer, D. R., Psihogios, A. M., Barakat, L. P., & Schwartz, L. A. (2023). Psychosocial Impact of COVID‐19 on Caregivers and Adolescents and Young Adult Survivors of Childhood Cancer. Pediatric Blood & Cancer, 70(6). https://doi.org/10.1002/pbc.30291

La, I. S., Johantgen, M., Storr, C. L., Zhu, S., Cagle, J. G., & Ross, A. (2024). Spirituality moderates the relationship between cancer caregiver burden and depression. Palliative & Supportive Care, 22(3), 470-481. https://doi.org/10.1017/S1478951523001785

Li, C., Tang, N., Yang, L., Zeng, Q., Yu, T., Pu, X., Wang, J., & Zhang, H. (2023). Effect of caregiver burden on anticipatory grief among caregivers of elderly cancer patients: Chain mediation role of family functioning and resilience. Front. Psychol., 13, 1020517. https://doi.org/10.3389/fpsyg.2022.1020517

Ma, H., Zhao, T., Ma, Y., Yuen, J., Ho, K. Y., Yung, J. Y. K., Lam, K. K. W., & Christensen, M. (2023). Family Caregivers' Lived Experience of Caring for Hospitalised Patients With Cancer During the COVID‐19 Lockdown: A Descriptive Phenomenological Study. Journal of clinical nursing, 32(19-20), 7509-7518. https://doi.org/10.1111/jocn.16817

Mohammadian, B., Mohammadi-Shahboulaghi, F., Hosseini, M., Arsalani, N., Fallahi-Khoshknab, M., & Pirjani, P. (2024). Support Needs of Family Caregivers of Older Patients With Cancer in Iran:A Qualitative Study. Salmand: Iranian Journal of Ageing, 19(3), 484-505. https://doi.org/10.32598/sija.2023.3655.1

Molassiotis, A., & Wang, M. (2022). Understanding and Supporting Informal Cancer Caregivers. Current Treatment Options in Oncology. https://doi.org/10.1007/s11864-022-00955-3

Moshtagh, M., & Allahyari, E. (2022). Informational and Supportive Needs of the Family Caregivers of Women With Breast Cancer in a Low Resource Context: A Cross-Sectional Study. Palliative Medicine in Practice, 16(1), 59-65. https://doi.org/10.5603/pmpi.2021.0031

Phiri, L., Li, W. H. C., Cheung, A. T., & Phiri, P. G. (2023). Effectiveness of psychoeducation interventions in reducing negative psychological outcomes and improving coping skills in caregivers of children with cancer: A systematic review and meta‐analysis. Psycho‐Oncology, 32(10), 1514-1527. https://doi.org/10.1002/pon.6208

Safari Dizaj, S., Rezvani Chamanzamin, F., Moheb, N., & Owtadi, S. (2023). Effectiveness of mindfulness-based cognitive therapy on emotional deficiency and caregiving stress in women with a husband suffering from cancer. J Health Care, 25(1), 51-61. https://doi.org/10.61186/jhc.25.1.51

Sari, N. P. W. P., & Manungkalit, M. (2023). The effect of family appraisal on caregiver burden in family caregiver of female cancer patients. IJPHS, 12(2). https://doi.org/10.11591/ijphs.v12i2.22788

Sharbafchi, M. R., Mousavi, S. M., Sheikhani, G., Keyvanara, M., & Ani, S. (2025). Caring Challenges of Family Caregivers of Cancer Patients in the COVID-19 Pandemic: A Qualitative Study. Iranian Journal of Nursing and Midwifery Research, 30(2), 175-181. https://doi.org/10.4103/ijnmr.ijnmr_125_23

Stone, M., McDonald, F. E. J., Kangas, M., Sherman, K. A., & Allison, K. R. (2024). Bereavement Guilt Among Young Adults Impacted by Caregivers’ Cancer: Associations With Attachment Style, Experiential Avoidance, and Psychological Flexibility. Palliative & Supportive Care, 22(6), 1998-2006. https://doi.org/10.1017/s1478951524000932

Thomson, M. D., Genderson, M. W., & Siminoff, L. A. (2022). Understanding cancer caregiver burden over time: Dyadic assessments of family cohesion, conflict and communication. Patient Education and Counseling, 105(6), 1545-1551. https://doi.org/10.1016/j.pec.2021.10.014

Tourani, F., Aghaee, H., Nouhi, S., & Tabatabaee, S. M. (2024). Comparing the Effectiveness of Emotion-Oriented Therapy and Compassion-Based Therapy on Premature Bereavement and Psychological Distress of Caregivers of Cancer Patients. Rooyesh-e-Ravanshenasi Journal (RRJ), 13(7), 131-140. https://frooyesh.ir/article-1-5568-fa.html

Udaykar, S. M., Salunkhe, J. A., & Gudur, R. A. (2023). Quality of Life in Gynecological Cancer Patients: A Review. Journal of Coastal Life Medicine, 11(1), 1392 - 1397. https://jclmm.com/index.php/journal/article/view/534

Weiss, C., Johnson‐Koenke, R., Sousa, K. H., Ulrich, C. M., & Hirschman, K. B. (2023). Unveiling Tensions: Caregiving for Older Adults With Cancer in the Covid-19 Era. Innovation in Aging, 7(Supplement_1), 1147-1148. https://doi.org/10.1093/geroni/igad104.3683

Yuen, E. Y. N., & Wilson, C. J. (2022). The Relationship between Cancer Caregiver Burden and Psychological Outcomes: The Moderating Role of Social Connectedness. Current Oncology, 29(1), 14-26. https://www.mdpi.com/1718-7729/29/1/2

Yuen, E. Y. N., & Wilson, C. J. (2022). The Relationship between Cancer Caregiver Burden and Psychological Outcomes: The Moderating Role of Social Connectedness. Current Oncology, 29, 14-26. https://doi.org/10.3390/curroncol29010002

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Published

2026-06-22

Submitted

2025-07-30

Revised

2025-12-14

Accepted

2025-12-21

Issue

Section

Articles

How to Cite

Pazira, S. ., Abolmaali, K., Ahadi, M. ., & Azadi, M. . (1405). Exploring the Lifeworld of Caregivers of Patients with Cancer: An Interpretative Phenomenological Study. Journal of Psychological Dynamics in Mood Disorders. https://maherpub.com/index.php/pdmd/article/view/678